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Stop the Merry-Go-Round

6/8/2016

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I had an elbow infection in September, went into the hospital for IV antibiotics, got a terrible reaction [C-Diff]. Took another three antibiotics to cure the reaction to the IV antibiotics. Being weak and in bed and wheelchair for several weeks, I had some skin breakdown on my caboose. Due to my weak condition, the wound developed an infection.

I went into the hospital and had to take IV antibiotics; got a terrible reaction [C-Diff]. Took two antibiotics to cure the reaction to the IV antibiotics. This time, no cure, just keeping it managed.

Continuing with physical therapy, every time I started to make gains, got sick again.

With my disability, I get that this stuff happens and try to deal with it as best I  can. I just can't help saying, Stop  the Merry-Go-Round, I want to get off.

Navigating Disability Road
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Looking Ahead.......

1/5/2016

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Well, 2015 is over and I'm glad. The kinda year that if something could go wrong, it did. Fighting infections, getting sick from the infection treatments, moving to a new environment, losing abilities, skin breakdown, and equipment problems are just a few of the highlights.

Of course, being Mr. Crankypants is not the state of mind I need to be able to present a more positive outlook. I was even hesitant about my first paragraph, but, reality; it is what it is.

Happy New Year and many blessings to all of you. Let's just give it our best shot today.
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New 'Handicapped' Symbol

7/29/2014

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 An effort to adopt a more in-motion symbol for accessibility is gaining traction with New York requiring all new signage in the state to utilize the “Accessible Icon.” (Accessible Icon Project)

A revamped version of the blue and white icon that’s long symbolized accessibility everywhere from parking lots to restrooms will soon be commonplace in more communities.

Under a bill signed late last week, New York will be come the first state to require all new and replacement signage used to signify accessibility for people with disabilities to include a more active, in-motion image of a person using a wheelchair.

The state will also change the terminology on such signs, employing the word “accessible” instead of “handicapped.”

The shift is about more than aesthetics, New York Gov. Andrew Cuomo said in signing the legislation.

“This bill is an important step toward correcting society’s understanding of accessibility and eliminating a stigma,” Cuomo said.

New York City and a smattering of other localities, businesses and schools have already agreed to adopt the revamped symbol, known as the “Accessible Icon,” which first gained momentum through a grassroots effort in Boston.

What’s more, the icon is currently on display at the Museum of Modern Art in New York City as part of an exhibit of culturally-relevant designs developed in recent decades.

From DisabilityScoop.com



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Pool's Open

6/13/2014

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Deb and I realized several years ago that making our home the hub of recreational opportunities is the most practical and enjoyable way for us to get our 'kicks'. Three years ago, we had an above ground pool installed. We usually gasp for air when we discuss costs, but, we don't incur the annual vacation road trip expenses, so, it really does equal out quickly.

As it is with EVERY endeavor, my situation ALWAYS creates special challenges and issues. However, we do a great job discussing these issues, our feelings and our concerns before we take the plunge [yes, that was on purpose]. For example, the special challenges for me with the pool:

Problem

  1. Getting to the pool
  2. Getting in / out of the pool
  3. Water temperature
  4. Lack of body control
  5. Intense sun & heat poolside

Solution

  1. Deck with ramp
  2. Hand crank lift
  3. Solar & propane heat
  4. Floatation inner-tube
  5. Large umbrella for deck shade
Admittedly, Deb enjoys the convenience and ability to jump in the water at any time. She makes cleaning the water part of her swim routine and does an excellent job with maintenance. The water always is clear and inviting. Stop by for a dip anytime!
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Self Conscious

4/17/2014

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Self conscious
I believe that we are all self conscious. How others see us, how they draw conclusions about the way they think we are; we all care about that, some more than others.

I recall my first 'outing' from the rehab hospital. Five of us patients were herded into the van along with the four support staff. We went to a local restaurant. We were clearly the room's main attraction. Everyone looked and many watched. Some patrons seemed uncomfortable, some had the 'those poor folks' look, some had the 'that's so nice they get out' look, some ate up and left quickly.

I was very uncomfortable. I was learning to use new equipment and still developing methods and control to feed myself.

Since that time, I've learned to be quite adept with the equipment and have a good method of eating. A look at my belly confirms my skill level. I don't think much about how I appear to others anymore. I just focus on the task at hand.

Until I saw the attached picture of me eating my birthday cupcake, I hadn't really thought about my tools and methods for a long time. I have a disability and this is how I do it. Sometimes, you get icing on your nose. I guess my adjustment to disability process has come a long way, too...

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Hope for Steve

4/8/2014

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Continuing to follow Steve & Hope Dezember II as they deal with ALS. They have a documentary coming out soon; stay tuned...
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2014 Paralympic Games

3/4/2014

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Sochi Paralympics
     March 7th - 16th are the dates for the Winter Paralympic Games in Sochi. Of course, the Ice Sledge Hockey is my favorite event. However, I respect all the athletes because I understand the effort and sacrifice needed to compete. I have not been able to find any specific times for broadcast coverage here in the U.S., but, I'll pass the info along when I do...

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Cancer

11/12/2013

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        I am blessed to be a cancer survivor. After 14 years, I feel confident to say I am cured. Well, cured from that cancer at that time. I'm not silly enough to think that another cancer won't creep into my life. There is a great article about coping with cancer. Naturally, these coping skills can work for any type of illness / injury related issue. Click Here for the article...

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NORMAL Depression?

11/3/2013

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Normal
        Yes, it's true! Feeling depressed is NORMAL. Hey, we are emotional beings. Feeling depressed is part of the package of emotions that we get. Sometimes, feeling depressed about things that occur in your life or in another's is not necessarily a bad thing. It is a sign that we care, we empathize, it hurts, etc... It is frequently one of the stages of healing.
        Depression is bad if you get stuck there. That's why, "I'll try" is so important. Feeling 'depressed' is a part of life. Do your best to make it a small part.

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Depression

11/1/2013

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Depression
        Recently, I was asked to visit a person who, according to my source, was laying in bed for days at a time feeling depressed. Hopefully, the fact that I could do the same thing because of all my challenges, but I don't, would provide this person with the miracle healing they needed to get moving. I agreed, feeling in my heart that this person would need more than I could give, but visited any way.
        I was welcomed by an apparently 'normal' person. They spoke intelligently, seemed to maintain good personal hygiene, the apartment was clean and orderly. It was a comfortable visit with a 'nice guy'. As we discussed our lives and circumstances, there was one short statement that I heard many times; "I can't".
        Me: Have you tried this?
        Them: I can't because...
        Me: Have you considered that?
        Them: I can't because...
This person does have some physical challenges, but, has all the medical support at their disposal. They are receiving medications for their depression and pain. They are getting counseling. The only piece missing is an "I'll  try".
        With one small 'I'LL TRY', this person's world could start to change. All the positive sayings, slogans and people in the world will not make that change; it's up to each one of us to do it for ourselves. Depression, the blues, melancholy; all these can be improved by an 'I'll try'.

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