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Making Your Home Accessible

12/29/2016

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Navigating Disability Road--Accessible home design
Accessible home design and construction have finally come out of the shadows. In part because it is acceptable to have a disability. In part because contractors can capitalize on a very real need in the community. Our senior citizens, trying to remain safely in their homes, are a huge part of the population seeking accessible design and  equipment.

The hazard in the road is that a ramp, grab bars, and door levers seem to be the focus; 'Universal Design'. Certainly, these are frequently necessary, but are not the whole story. Universal design must be used in conjunction with a clear understanding of a person's current physical limitations and probable future limitations. Design and location of stuff like:

  • doorway width
  • doorway thresholds
  • turning area for wheelchair access
  • flooring type
  • height of light switches
  • height of outlets
  • height of tables, chairs, counters
  • kitchen drawers, cabinets, appliances
are all influenced by your current and possible future challenges.

The key to success is truly understanding a person's limitations. Sometimes, that means that you have to look reality in the eye. This is frequently difficult. Honest answers to questions like what can I do? / What can't I do? / What is realistic for me to do? / are challenging. Add to that the unpredictability factor of our changing abilities and you realize that easy home modifications are not so easy.

Speak with Occupational and Physical Therapists, nurses, and especially people with similar challenges. The seemingly small details will make a huge difference. Making your home truly accessible is possible with a good, honest assessment of a person's needs. Money will help, too!
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Sir Isaac Newton and Me

12/12/2016

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Picture
      No matter which task I perform, I am relatively safe until I try to move from my wheelchair to another seat [toilet / bed] or back to the wheelchair. Each move of the hands, feet, arms, wheelchair, etc is carefully planned and must be executed exactly to the plan. It is a finely orchestrated dance of the mind and very uncooperative body fighting my arch rival, gravity.
      Yep, gravity. Always there, never faltering, constantly pulling on me and sometimes, bringing me down. That is a physical and emotional state. When I do hit the floor, I am unable to get myself back up. Yes, too many people laugh at the commercial of the old woman crying, "Help, I've fallen and can't get up!" I understand her plight. There is NOTHING entertaining about it.
      So, as I perform a transfer from wheelchair to toilet last week, my attention waivers for a moment and somehow, the wheelchair slides to the right as I move left. That creates just enough space for gravity to reach up and pull my butt into that space. The panic rushes up through my body and my brain races for a solution. I gather my thoughts and strength, take a deep breath and once more, heave toward the toilet. The wheelchair moves more right and gravity gives my butt another pull. Greater panic rushes through me and I am now at the awful, terrible, frightening, OHHHH NOOOOO moment. Still suspended but past the point of recovery with the knowledge of what will happen next. I make one last feeble, futile attempt to find ANY seating. The gap opens, my arms tremble and gravity pulls me down.
      The move is slow and I plop on the floor. The second wave of panic hits harder than the first. Someone left his phone on the desk in another room; 20 million light years away as gravity holds my butt in it's relentless grasp. This means that I will laying on a cold and very hard ceramic tile floor until my wife gets home. The math was easy. It's 12:30 now and my wife MIGHT be home by 6:00.
     She did arrive at 5:30. I'll take ANY blessing at that point. No, I won't be forgetting my phone again and I will try to be more careful. Sir Isaac Newton, you can warm up my cold butt!

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Did You Say 'FECAL Transplant' ?

11/3/2016

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Navigating Disability Road--Fecal Transplant
          After trying every medication out there used to treat Clostridium Difficile [C-Diff], the option presented was to have a fecal transplant. Yes, you read that correctly, a fecal transplant. Donor poop is actually planted into your colon. As crazy as it initially sounds, it does make sense.
         C-Diff is bacteria in your colon that has taken over and created an imbalance destroying the healthy bacteria. This imbalance is created when you take large doses of antibiotics. C-Diff is highly contagious and is a huge problem in healthcare facilities, nursing homes, and personal care homes. Oddly, the medications they use to treat this are antibiotic based themselves [Vancomycin, Flagyl, and Difficid]. When these don't work [or you can't afford them; Difficid is $4,000 for 20 pills], the only option left is the fecal transplant.
          So, the best way to regain the healthy state of your colon bacteria is to give it a big cleansing flush and plant the seeds of healthy bacteria. How do you get the good stuff? Well, you call a family member [this is preferred] and ask them if they'll donate some poop. That's an interesting call to make, and, I'm sure, receive.
         The donor has to provide two separate samples and have them screened before a third sample is donated and screened again for use the day of the procedure. This one is the tough one. poop on command 6 hours before the procedure and get it to the lab.
         If this donation is approved, the lab makes a kind of slurry with the poop and saline solution. Meanwhile, the patient has done their part by getting ready / prepping for a colonoscopy. Drinking the flushing solution the night before and then getting to the GI Lab. The doctor performs the colonoscopy , and, as they back out of your colon, they spray the walls of your colon with the magic mixture.
         This process accurately brags about having a 97% success rate and the results are immediate. It does seem kinda weird, but, it works!
           Yup, I did say 'FECAL Transplant'!

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